Day Leave

I have been granted an entire day at my own home! Not a big deal, many would say, but I am now so institutionalised, that I was awake from 4am because I was so excited.

I was nervous about how I might cope. I was worried I wouldn't know how to behave. I was excited to see my cat. I was dying to go outside and stand on the grass - despite the fact that it is a howling storm outside. I wanted to lie on my bed and grab some new undies, the four pairs I have in hospital are probably getting a bit over-washed by now. 

Walking into my house felt weird. On the drive home I'd suddenly realised just how long I've been unwell for, nearly six weeks now. I've been in hospital for two, it's been a month since I rang my mum to come down, and things started before that phone-call.

To be honest, it's all a little overwhelming.

I got home and played with the cat, and lay on the grass in the pouring rain and took a long bath without worrying about a nurse coming to check and even shaved my legs without asking for the razor!

I'm now only an hour or so away from going back to the hospital. I have made it through the day without taking any PRN (lorazepam if needed), but it hasn't been without it's hiccups.

I'm currently sitting in my bed, listening to Bean and Husband out in the kitchen making dinner, feeling to anxious to go back into the chaos, and aggravated by Bean's "I'm hungry" noises. I get up and try to feed her, but it doesn't help, I know that husband is frustrated that I'm not being helpful and he is doing tea and looking after her. So I try to help, I take her to her room to give her a bottle and hopefully she'll sleep. But she is refusing the bottle and STILL screaming in that overtired manner and suddenly I feel dangerous inside. I call out for my husband and push Bean into his arms as soon as he arrives.

I'm pleased I was able to call him. That I was able to recognise those feelings. But I did just break my no PRN record. Lorazepam was downed as soon as I got into the kitchen and 'took over' dinner, which was already finished.

I'm worried that I won't ever be able to cope with her crying. I worry that I won't ever be able to be a mum properly to her again. I'm worried about how I'm going to manage full stop. What if I can't and I never get better and never get out. Or worse, what if they give up on me and I do get out and then I can't cope.

And then I look back.

Two weeks ago I couldn't even handle feeding her without crying and feeling like I wanted to scream. My husband was having to take days off work because I couldn't face her without crying or becoming a quivering mess at the thought of yet another day being unable to manage her demands.

But this week has gone better. I haven't yet made it through an entire day without having a nurse have to take her for a while, but those times are getting shorter. 

I have taken control of my meds a bit, and feel more able to be in control of my own treatment and recovery. I've posted a job advert on my FB page asking for some in home help and a babysitter. We are looking into a couple of half days of Day Care and it looks like I will be eligible for a set number of respite hours during the year.

Surely things can't be too far away from getting back to normal?